Σύνοψη επεισοδίου
In this emotional interview, Craig Cody discusses the conclusion of a six-month intensive media campaign to secure access to a life-changing drug for Friedreich's ataxia patients in Ireland. Following a period of intense advocacy and public pressure, the Minister for Health has confirmed that the drug will be made available through the HSE. The episode features Fianna Fáil TD Padraig O'Sullivan, who reflects on the political impact of the campaign and the necessity of overhauling the 2013 Health Act to prevent future delays in drug reimbursement. The conversation touches upon the personal toll of the struggle on the Cody family, the role of media in driving legislative change, and the ongoing challenges regarding rare disease treatments in Ireland.
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Κυριότερα σημεία
nobody should be going on here to basically sell their soul and to beg for a life-changing drug.
00:02:06 · Craig Cody describes the emotional difficulty of using his personal tragedy as a tool for public advocacy.
The fact is the 2013 Health Act, and I've been critical of it for the six years I've been up in Dublin, Nick, Needs a radical overhaul.
00:06:38 · Padraig O'Sullivan identifies the specific legislation responsible for delays in drug reimbursement.
less than 40% of these new drugs will be approved in Ireland that are approved more widespread in Europe.
00:10:41 · The TD highlights the disparity between drug availability in Ireland compared to the rest of Europe.
It's just cruel and inhumane when we're shipping them everywhere else and they're not available to our own people here.
00:14:22 · O'Sullivan argues against the irony of Ireland manufacturing drugs that its own citizens cannot access.
It is a bittersweet victory because people are still very sick with their own diseases.
00:15:48 · O'Sullivan notes that while the campaign was successful, the underlying systemic issues for other rare diseases remain.
In this emotional interview, Craig Cody discusses the conclusion of a six-month intensive media campaign to secure access to a life-changing drug for Friedreich's ataxia patients in Ireland. Following a period of intense advocacy and public pressure, the Minister for Health has confirmed that the drug will be made available through the HSE. The episode features Fianna Fáil TD Padraig O'Sullivan, who reflects on the political impact of the campaign and the necessity of overhauling the 2013 Health Act to prevent future delays in drug reimbursement. The conversation touches upon the personal toll of the struggle on the Cody family, the role of media in driving legislative change, and the ongoing challenges regarding rare disease treatments in Ireland.
Επεισόδια
Craig Cody father of child with Friedreich's Ataxia
ΑκούστηκεIn this emotional interview, Craig Cody discusses the conclusion of a six-month intensive media campaign to secure access to a life-changing drug for Friedreich's ataxia patients in Ireland. Following a period of intense advocacy and public pressure, the Minister for Health has confirmed that the drug will be made available through the HSE. The episode features Fianna Fáil TD Padraig O'Sullivan, who reflects on the political impact of the campaign and the necessity of overhauling the 2013 Health Act to prevent future delays in drug reimbursement. The conversation touches upon the personal toll of the struggle on the Cody family, the role of media in driving legislative change, and the ongoing challenges regarding rare disease treatments in Ireland.
26th August 2026
ΑκούστηκεThe Neil Prenderville Show covers the HSE's approval of Skyclarus for Friedrichs ataxia, featuring an emotional interview with Craig Cody about his campaign for life-changing medication and calls for legislative reform in drug reimbursement. The episode also explores the harrowing history of institutional abuse in Ireland through Mary Donovan's search for her siblings at the Bessborough site. Additionally, the program discusses the intense pressure surrounding CAO offers and educational alternatives, provides news briefs on topics ranging from Lego's sales to student scams, and concludes with a widespread tribute to the life, business acumen, and enduring legacy of Dolly Parton.
Mary Donovan discovered she had twin siblings
ΑκούστηκεMary Donovan recounts her investigation into her mother's history, uncovering a life of institutionalization in Magdalene laundries and reformatories, as well as the discovery of hidden siblings. She details her personal experiences within the industrial school system, including her 51-day hunger strike and the trauma of being boarded out into an abusive foster home. The episode further explores the lasting intergenerational trauma caused by state-sanctioned abuse, the importance of preserving the Bon Secours site as a memorial, and the fight for justice through the Redress Scheme. Mary pays tribute to her mother's resilience despite the psychiatric abuse and traumatic treatments she endured.
25th August 2026
ΑκούστηκεThe Neil Prenderville Show reviews a wide range of pressing news, from local tragedies and rising crime in Cork to the critical delays in pediatric psychological services. The episode explores significant demographic shifts in Ireland, the impact of ancillary fees on Ryanair's business model, and the complexities of airline pricing and baggage strategies. The program also features deep personal stories, including Christopher Deneen's emotional journey through adoption and loss, alongside intense discussions on healthcare crises regarding the drug Skyclarus. The episode concludes with insights into the modern cruise industry, community protests against tree removal, and the experiences of tourists visiting Cobh.
24th August 2026
ΑκούστηκεThe Neil Prenderville Show covers a range of pressing social and criminal issues, including the investigation into the death of a Brazilian woman in Limerick and ongoing tensions at the Spring Lane halting site. The program also features an in-depth discussion on the critical need for HSE reimbursement of the drug Skyclarys to treat Friedreich's ataxia, highlighting significant cost discrepancies between Ireland and other nations. Additionally, the episode explores mental health through an interview regarding postpartum psychosis and its connection to the Lindsay Clancy case. The show concludes with various community updates, ranging from local infrastructure concerns like potholes on Mallow Road to discussions on housing planning rejections in Ballincollig.